Life in Spite of MS Blog
The Life in Spite of MS Blog is our written experience about living with MS. It...
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Health directory
Planning for a Future with MS
Planning for a Future with MS - Whether it's financial concerns, medical decisions, or preparing children for life with MS in the family.
Balancing Responsibilities and Childhood
Balancing Responsibilities and Childhood, older children may feel responsible for helping their parent while juggling school, extracurriculars, and social lives
Children of Parents with MS
Children of parents with MS often develop resilience and empathy early in life. They may take on caregiving roles and learn to be flexible along the way.
Communication is The Key to Strengthening Bonds
Communication is The Key to Strengthening Bonds - Discussing MS openly helps everyone process the changes and understand what to expect.
Continue reading "Communication is The Key to Strengthening Bonds"
Navigating Everyday Family Life with MS
Navigating everyday family life with MS includes how families juggle daily tasks when MS symptoms vary. Assigning roles, utilizing support systems and more.
Understanding the Family Dynamic in Families with MS
Understanding the family dynamic in families with MS - What goes on in a family with MS? How does it affect each relationship? Fathers, Mothers, and children?
Continue reading "Understanding the Family Dynamic in Families with MS"
Driving with MS: Staying Safe and Independent
Are you still driving with MS? Do you have the desire to continue to drive? Do you have weakness in your limbs or other symptoms that make it difficult to drive?
Continue reading "Driving with MS: Staying Safe and Independent"
Ann Romney Part 2
Ann Romney is the wife of presidential hopeful, Mitt Romney. Find out about the alternative treatments she has chosen to help manage her MS symptoms.
Tracking MS Symptoms - Why it Matters and How to Make it Work for YOu
Tracking MS symptoms matters for you if you live with the chronic disease of multiple sclerosis.
Continue reading "Tracking MS Symptoms - Why it Matters and How to Make it Work for YOu"
What Does MS Mean to You?
What does MS mean to you besides multiple sclerosis? Is it something positive? Negative? Or something inspirational? We'd love to know.
WAH for Disabled Individuals
WAH for disabled individuals may not be as hard to find as you may think. There are some things you should consider before pursuing a job at home if you are disabled, though.
More Anti-inflammatory Recipes for MS
Here are a few more anti-inflammatory recipes to help with your MS symptoms.
Anti-inflammatory Foods for MS
A list of anti-inflammatory foods for MS. There is also a simple meal plan and a few easy recipes to help get you started.
Montel Williams Updates
Montel Williams Updates shares with you what Montel is up to now. From a podcast, cannabis products, and new show, and more.
Ocrevus Approved for Primary Progressive MS
The new Ocrevus MS therapy has been approved by the FDA for Primary Progressive and Relapsing Remitting MS.
Continue reading "Ocrevus Approved for Primary Progressive MS"
My Infertility and MS Story
My MS story began two weeks after a pregnancy loss following my first round of IVF. We’d had other losses, but this one seemed to have a bigger effect
Meet Steven Mueller - Again!
Since we last met Steven Mueller, a lot has changed in his life. See the updates he has to share with his new wife.
Meet Julie Blackburn
Meet Julie Blackburn, creator of the Spoonie Day App! Learn a little about her and why she created the app for people just like you.
Neurostimulator to Repair Myelin Sheath
Wow! A neurostimulator to repair myelin sheath may be the next stage in the treatment of MS. One that may restore damage and not just slow it down.
Of Curbs and Cutaways
Of Curbs and Cutaways is an essay about an experiece we had several years ago. I hope you enjoy reading it.
Multiple Sclerosis Awareness Month 2024
It's here! Multiple Sclerosis Awareness Month 2024. What's on the agenda this year? Among other things, mental health.
Plant-Based Diet
A plant based diet and MS is not a new thing. To the contrary, it has been around for several years.
MS Awareness Shop
The MS Awareness Shop is where you'll find all those accessories to create awareness of multiple sclerosis, one mug at a time
MS Jewelry Shop
Our MS Jewelry Shop is where you can find pins, bracelets, pendants, and more - jewelry with a multiple sclerosis theme.
As I See It!
MS is SHIT I fucking hate IT I no longer WALK Thank god I can TALK It’s messed up my LIFE I’m no longer a WIFE Trapped in my HOUSE I feel like a LOUSE
Microparticles Reversed Physical Disability in MS Mouse Models
Microparticles reversed physical disability in a mouse model at Johns Hopkins School of Medicine
Continue reading "Microparticles Reversed Physical Disability in MS Mouse Models"
Lola Falana Part 2
In Lola Falana Part 2 you'll be able to watch more of her available interviews, find links to movies or ways to buy them.
Low Dose Naltrexone
I started going to a naturopath after my GP refused to entertain any notion of using LDN, and he started me on it in 2017. I've used it ever since, and
Remember
I can't remember the last time I remembered to remember the thing I often forget. I can't remember the last time I recaptured a story from my past and
Conjure Comix Kickstarter
Hello visitors, fellow MSr’s, and caregivers, this is a somewhat unusual post, however, Cir and I would love for you to share in our excitement for our son’s recent accomplishments. As a child, Cir Jr loved comics, receiving them for gifts and subsequently devouring them. He loved Captain Planet because the character wanted to save the planet and create a sustainable future for humanity.
He loved the format with its action-packed artwork - the story told in words and graphic pictures with all the excitement of a movie in physical form. As a result of his love for this artform, he spent hours creating characters and worlds from his own imagination, ultimately merging his passion for social justice and comics, to give birth to the project he is now promoting via Kickstarter.
The project, a comic book publishing company, called Conjure Comix, and the story behind it, won the local 2019 Knights Art Challenge with a $60,000 grant prize contingent upon raising matching funds of $30,000 to bring his dream to life. As we all know, the following year, 2020. put a halt to many activities, including Cir Jr's dream of starting his publishing company.
The pandemic did add a new perspective to his project when we saw how marginalized groups were disproportionately affected by COVID, including those with disabilities due to conditions like MS, the African American community, the LGBTQI community, and others. He saw a need for an accessible and easy way to learn about social justice issues through comic books, tracts, and graphic novels.
My hope is that you will join us and pledge as we have, to help get his company off the ground and spread his vision around the world. We also hope that you will share the Kickstarter link with your friends, family, and acquaintances as well.
As a child with a parent suffering from MS, Cir Jr, as well as his siblings, faced tremendous odds at a young age as they watched their father deal with the effects of multiple sclerosis. It directly affected them and the choices they’ve made in their lives as grownups. Cir Jr and his siblings have developed empathy for marginalized groups within our society and want to advocate for and make others aware of what it’s like to live with a disability or as a member of one of those groups.
Cir Jr’s contribution was to create Conjure Comix. Please click on the link above or below to read and listen to his story and help support his dream of creating tracts and graphic novels as you are able. Share it with your family and friends. You’ll be glad you did.
Selma Blair
Selma Blair is an American actress who has MS. She shares her journey in her documentary, "Introducing Selma Blair".
John King
John King revealed to the world that he had multiple sclerosis on October 19th of 2020. Who new?
Cir's 5 Year Tysabri Update
Hi Dear Vistor, A quick update on Cir's Tysabri journey. As you can see from the title of this post, Cir has been taking it for about 5 years now. We
Slight Decline
Eyes fall from above, Looks intended to show love. Missed connections brought to light, Body and brain continue to fight. Look down, heart pound Grass
MS and COVID19
Wondering about MS and COVID19? Here is a video to answer your questions by the National MS Society.
A Vaccine for MS
A vaccine for MS is currently in the works. Wouldn't it be great if there were a vaccine that could prevent and possibly reverse MS? Find out about it here.
Balancing MS
The balancing act of life with no balance. Adjusting to PPMS with tragic optimism. Since being diagnosed, I have thought a lot about the duality of
Downloading Songs
Hi! Fans, when you download any of my songs, all proceeds go to Life in spite of MS. Thanks alot for being a fan, I sure do appreciate it. Vince
Dear Friends,
"Life in Spite of MS is a participant in the Amazon Services LLC Associates Program, an affiliate advertising program designed to provide a means for sites to earn advertising fees by advertising and linking to Amazon.com. We're also part of the Ebay Partner Network, another affiliate program."
We'd also like you to know it doesn't cost one cent more when you click through the links here on our blog. Not one single penny. And we will make a little extra cash when you do click through. We'll be ever so appreciative. You also have our word that we'll only link to things that we would use ourselves, (or wish we could have or use).
Sincerely,
Cir & Akrista
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