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History of Multiple Sclerosis - Cases 2

Have you reached the History of Multiple Sclerosis - Cases 2 first and would like to go back and read Part 1? If so, click here.

Bruce Cummings (1889-1919)

Bruce Cummings - W.N.P. Barbellion

Another case history of multiple sclerosis was written by a British diarist, W.N.P. Barbellion. This was the nom-de-plume (pseudonym) of Bruce Frederick Cummings (7 Sept. 1889 – 22 Oct. 1919).

He, like Sir Augustus, also kept a detailed log of his struggles with MS for most of his life. His written account, however, was published in March of 1919, only a few months before he died, succumbing to the disease. The title of the diaries was “The Journal of a Disappointed Man”.

Cummings chose the name W.N.P. Barbellion, to protect the identities of his family and close friends. The names “Wilhelm”, “Nero”, and “Pilate”, were chosen because they were “examples of the most wretched men ever to have lived”. The true identity of “Barbellion” wasn't known until some time after Cummings death.

A rejection

A reviewer of his book, Ronald Blythe called it "among the most moving diaries ever created". 

Cummings did not even know he had the disease we now know as MS until after he was rejected from joining the army. His doctor had given him a sealed letter to give to the medical officer at the recruitment center.

After the physical exam, Cummings was rejected as unfit for active duty. He was so disappointed and hurt that he decided to open the sealed letter anyway.

Family Support

He then found out that his doctor had diagnosed him with the disease. He also said that Cummings most likely had less than five years to live. Cummings had just recently married and had a daughter, Penelope, in October of 1916. He even kept his discovery a secret from his wife and family to spare their feelings.

He was very moved to find out that his wife, Eleanor, had known about his MS even before he married her. His family had also been informed and knew of his condition before he did. I suppose there is a lesson in there somewhere. 

I actually knew there was something wrong with Cir's health before we married as well. He didn't know what it was, even though his parents made a statement when they found out about his weakness as a teenager. Cir remembers his parents saying something like "it sounds like MS".

Back to the history of multiple sclerosis ....

"The Journal of a Disappointed Man"

Bruce Cummings diaries:

  • The Journal of a Disappointed Man Enjoying Life and Other Literary Remains, and 
  • A Last Diary,

were published in 1920, and were very well received. The first book is admired by many with multiple sclerosis to this day. You can even read it online or download it here (link opens a new window).

It offers an honest look at MS that you can probably relate to. It is still published today so that as someone with MS or someone who has a loved one with the disease, you can gain a greater understanding of it by reading about the history of multiple sclerosis through the eyes of someone who has also lived through it.

One of the most memorable passages written is one by Cummings on the subject of death.

Passage from The Journal of a Disappointed Man

"To me the honour is sufficient of belonging to the universe — such a great universe, and so grand a scheme of things. Not even Death can rob me of that honour. For nothing can alter the fact that I have lived; I have been I, if for ever so short a time. And when I am dead, the matter which composes my body is indestructible—and eternal, so that come what may to my 'Soul,' my dust will always be going on, each separate atom of me playing its separate part — I shall still have some sort of a finger in the pie. When I am dead, you can boil me, burn me, drown me, scatter me — but you cannot destroy me: my little atoms would merely deride such heavy vengeance. Death can do no more than kill you."

And in summing up his life he wrote the following:

"I am only twenty-eight, but I have telescoped into those few years a tolerably long life: I have loved and married, and have a family; I have wept  and enjoyed, struggled and overcome, and when the hour comes I shall be content to die."

I hope you follow the link to read Cummings, or should we say W.N.P. Barbellion's, diaries about his journey of living with multiple sclerosis in the distant past. I love historical fiction so this is right up my alley. Reading an account of MS in someone's own words inspires us to continue to write this blog. 

At the very least, it may offer inspiration or a feeling that as a future visitor diagnosed with MS, that you are not alone in dealing with multiple sclerosis. 

| History of Multiple Sclerosis - Part 1 | Part 2 | Part 3 | History of Multiple Sclerosis - Cases Part 1 | Cases Part 2 |

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Cir & Akrista

You are reading original content written by Akrista or Cir L'Bert of Life in Spite of MS. If you enjoyed reading this blog, please consider following us on Facebook, Twitter, Pinterest, and Instagram. See you there!

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