Disclaimer: This page may contain affiliate links. We may earn a small commission for purchases made through links in this post, at no extra cost to you.

Welcome to Jane's
Life in Spite of MS-Space!

Jane's Profile

My Life is Life with MS


Name: Jane D. in Indiana
How long with MS: 36 years with MS
Year DX: probable MS DX in 1973
Type of MS: Benign for many years then secondary progressive either about 10 yrs ago or since December, 2008-it's a judgment call


About Jane:
Hello, I guess I am a veteran MSer. I had been married just a year when I went blind (over several days) in one eye. The doctor added up some unexplained symptoms I'd had in college (vertigo, numbness and double vision)and put it together to spell m-u-l-t-i-p-l-e s-c-l-e-r-o-s-i-s. Of course there were no MRI's back then, but because my symptoms involved separate body systems and separate times, I was given the probable diagnosis. MS was much harder to diagnose back then, but my symptoms fell right for a DX.


I continued for the first years with a relapsing/remitting type of MS which over the years gave way to a more daily bout with sensory symptoms as well as numerous kinds of pain. I managed without drugs for the MS because at that time there were none. My philosophy was to save the drugs (steroids)for the "big stuff" that might come down the line. Instead of paralysis (thank you, God) or not being able to walk, I had virtually all the "little" stuff" over the years: basically all the scores of obnoxious, painful, annoying, disruptive, horrible, and undesirable things MS can bring to a life. But I slowly learned to cope with them, maintain a peace of my own despite trials, and persevere.


I am married to a wonderful husband, Bill, who thoroughly "gets it" now, but was seriously in denial for the first 25 years. We have three grown children and two black labs who are outdoor dogs. I eagerly await the day when I can skip mentioning the dogs and talk about grandbabies!


I set out right away to live a quiet life with the MS determining my style. We did have three children when the doctor suggested one or none because it was my greatest desire in life. I have always been careful to watch my three MS priorities from the start: fatigue, stress and heat.


For the past 18 years I have tutored grade school children part time, first at an enrichment center, now in my home. I also taught flute in my home. I was able to attend all my childrens' activities with the exception of a couple hot weather ones.


I spend a good deal of time on the computer as I have loved making friends, meeting and helping fellow MSers. I led multiple weekly AOL chats for ten years.


I very much support Cir and Akrista's venture of In Spite of MS! I love their attitudes, and I think they have a very fine start. I am thrilled they invited me to be a part of it. I look forward to many fun and informative times here. I know that together we can help make MS manageable!


With hope, appreciation, and love,

Jane

Jane Create Your Room!

Use this easy form to create pages in your room. Share your thoughts and advice about MS. You can add poems or stories - Write whatever you like in MS~Space.


Note: This form is for use in this room only.

Would you like to create your own Life in Spite of MS~Space? Click here.

Check Out the Pages in This Room!

Click below to view a page in this room...

Where have I Been for Heaven's Sake? 
Hello, it's been a long long time since I've been here. As you might have guessed, it's the MS that's taken me away. Yep, that big black looming presence …

Hip Hip Hip Hooray! 
Wow--I heard from our insurance company today and I WILL be getting a power wheelchair--maybe as early as tomorrow! Four months in the making, then all …

Doing some decorating, I hope 
I love this graphic; it speaks to me of the fact we are all one in this world--one in our triumphs and in our tragedies. We stand precariously on top …

MS Folks, Check Your Memories! 
My early morning wanderings online took me to a most interesting place today for MSers. I encountered a Memory Test from England which is comprehensive, …

Janes-MS-Story 
My journey with MS has been long, and taken all together, it has been hard. Thirty-six years with the MonSter has taught me that while no one wants …

My World it is A changin'--My Initial Hello 
Hello, New, Old and Haven't met yet Friends--I am delighted to have a spot to speak about my lifelong "friend"/foe, MS. After 36 years with the MonSter, …

Grandma Not rated yet
Yes I have had MS now for about 14 years and have had many stays at the hospital, been told I was crazy and nothing wrong with me, but then a neurologist …

Winter Update 2010 Not rated yet
Well, I'm making it. I was determined not to have the bronchitis hang on all winter like last, so in addition to 5 days of steroids, then another 5 days …

Hello 2010! Not rated yet
Oh, which day is good for an update? None, I suppose, so I'll jump in anyway. This winter...about like everyone else's I expect. We're not used to much …

New Meds on the Horizon for MS! Not rated yet
A seemingly unlikely source--Chemical & Engineering News--has reported through Ivanhoe that we MSers may soon have a choice of a variety of meds! …

Another Free Memory Test to Check Out Not rated yet
Hello--I have another "goodie" to share. It's a short memory screen which helps us keep track of how we are doing in our cognition, or the ability …

Click here to write your own.

Buy Me a Coffee at ko-fi.com

Dear Friends,

"Life in Spite of MS is a participant in the Amazon Services LLC Associates Program, an affiliate advertising program designed to provide a means for sites to earn advertising fees by advertising and linking to Amazon.com. We're also part of the Ebay Partner Network, another affiliate program."

We'd also like you to know it doesn't cost one cent more  when you click through the links here on our blog. Not one single penny. And we will make a little extra cash when you do click through. We'll be ever so appreciative. You also have our word that we'll only link to things that we would use ourselves, (or wish we could have or use).

Sincerely,

Cir & Akrista

You are reading original content written by Akrista or Cir L'Bert of Life in Spite of MS. If you enjoyed reading this blog, please consider following us on Facebook, Twitter, Pinterest, and Instagram. See you there!


New! Comments

Have your say about what you just read! Leave me a comment in the box below.

Enjoy this page? Why not pay it forward? Here's how...

Would you prefer to share this page with others by linking to it?

  1. Click on the HTML link code below.
  2. Copy and paste it, adding a note of your own, into your blog, a Web page, forums, a blog comment, your Facebook account, or anywhere that someone would find this page valuable.

Privacy Policy ~ Advertising Policy ~ DisclaimerContact Us ~ About Us

SBI!