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Welcome to Jane's
Life in Spite of MS-Space!

Jane's Profile

My Life is Life with MS

Name: Jane D. in Indiana
How long with MS: 36 years with MS
Year DX: probable MS DX in 1973
Type of MS: Benign for many years then secondary progressive either about 10 yrs ago or since December, 2008-it's a judgment call

About Jane:
Hello, I guess I am a veteran MSer. I had been married just a year when I went blind (over several days) in one eye. The doctor added up some unexplained symptoms I'd had in college (vertigo, numbness and double vision)and put it together to spell m-u-l-t-i-p-l-e s-c-l-e-r-o-s-i-s. Of course there were no MRI's back then, but because my symptoms involved separate body systems and separate times, I was given the probable diagnosis. MS was much harder to diagnose back then, but my symptoms fell right for a DX.

I continued for the first years with a relapsing/remitting type of MS which over the years gave way to a more daily bout with sensory symptoms as well as numerous kinds of pain. I managed without drugs for the MS because at that time there were none. My philosophy was to save the drugs (steroids)for the "big stuff" that might come down the line. Instead of paralysis (thank you, God) or not being able to walk, I had virtually all the "little" stuff" over the years: basically all the scores of obnoxious, painful, annoying, disruptive, horrible, and undesirable things MS can bring to a life. But I slowly learned to cope with them, maintain a peace of my own despite trials, and persevere.

I am married to a wonderful husband, Bill, who thoroughly "gets it" now, but was seriously in denial for the first 25 years. We have three grown children and two black labs who are outdoor dogs. I eagerly await the day when I can skip mentioning the dogs and talk about grandbabies!

I set out right away to live a quiet life with the MS determining my style. We did have three children when the doctor suggested one or none because it was my greatest desire in life. I have always been careful to watch my three MS priorities from the start: fatigue, stress and heat.

For the past 18 years I have tutored grade school children part time, first at an enrichment center, now in my home. I also taught flute in my home. I was able to attend all my childrens' activities with the exception of a couple hot weather ones.

I spend a good deal of time on the computer as I have loved making friends, meeting and helping fellow MSers. I led multiple weekly AOL chats for ten years.

I very much support Cir and Akrista's venture of In Spite of MS! I love their attitudes, and I think they have a very fine start. I am thrilled they invited me to be a part of it. I look forward to many fun and informative times here. I know that together we can help make MS manageable!

With hope, appreciation, and love,


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Where have I Been for Heaven's Sake? 
Hello, it's been a long long time since I've been here. As you might have guessed, it's the MS that's taken me away. Yep, that big black looming presence …

Hip Hip Hip Hooray! 
Wow--I heard from our insurance company today and I WILL be getting a power wheelchair--maybe as early as tomorrow! Four months in the making, then all …

Doing some decorating, I hope 
I love this graphic; it speaks to me of the fact we are all one in this world--one in our triumphs and in our tragedies. We stand precariously on top …

MS Folks, Check Your Memories! 
My early morning wanderings online took me to a most interesting place today for MSers. I encountered a Memory Test from England which is comprehensive, …

My journey with MS has been long, and taken all together, it has been hard. Thirty-six years with the MonSter has taught me that while no one wants …

My World it is A changin'--My Initial Hello 
Hello, New, Old and Haven't met yet Friends--I am delighted to have a spot to speak about my lifelong "friend"/foe, MS. After 36 years with the MonSter, …

Grandma Not rated yet
Yes I have had MS now for about 14 years and have had many stays at the hospital, been told I was crazy and nothing wrong with me, but then a neurologist …

Winter Update 2010 Not rated yet
Well, I'm making it. I was determined not to have the bronchitis hang on all winter like last, so in addition to 5 days of steroids, then another 5 days …

Hello 2010! Not rated yet
Oh, which day is good for an update? None, I suppose, so I'll jump in anyway. This winter...about like everyone else's I expect. We're not used to much …

New Meds on the Horizon for MS! Not rated yet
A seemingly unlikely source--Chemical & Engineering News--has reported through Ivanhoe that we MSers may soon have a choice of a variety of meds! …

Another Free Memory Test to Check Out Not rated yet
Hello--I have another "goodie" to share. It's a short memory screen which helps us keep track of how we are doing in our cognition, or the ability …

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