What to do?
Hi, my name is Chris and I am 25 years old. I live in a small oilfield south Texas town. My mother has M.S. and I'm not sure what stage it is but I know it's pretty bad. Since I was 18 I've been dealing with fatigue, muscle spasms, and pain/cramping in all my muscles but mainly my legs.
To add to that my G.I. and urinary are very bad as well, (and) I have suffered very slight incontinence in the past few years. My urination is so frequent it's tiring, and sometimes I feel an intense urge even after emptying my bladder or I'm constantly going every few minutes to let out an ounce or two.
My stomach hurts everyday, and diarrhea is not uncommon a few times a week. I get headaches, and sometimes I feel like my brain is working too hard. Some nights I wake up to urinate more than once. Others I can't sleep cause my legs are all achy and in knots. I've been to a cardiologist for irregular heartbeat and passed the stress test fine.
I've been to a urologist and was told that I get prostatitis, but after a scope though my urethra they found nothing along with my numerous urine tests. (I was) just given tons of antibiotics. I went to a G.I. doctor and after a scope through the mouth and the "other" place, nothing was found and the doctor said it was due to stress.
I went to the neurologist and nothing was found on my CT's, so then I finally got approved for MRI's. Then doctor found a mass in the middle of my brain close to the brain stem where the two lobes meet. He said it more than likely was benign and would like me to get a scan every 4 months.
(There has been) no growth for over a
year and a half, yet I still have the symptoms and seem to be more frequent as time progresses. After all this, I told my sister that I was feeling suicidal, because I felt horribly sick everyday for years now and there's nothing wrong with me, apparently.
She is a med student in Denver, Colorado, and she got a friend of hers at hospital university to give my info/scans to the colleges' neuro-surgeon. After looking at it she said that it looks like a mild demyelination of the brain of early on-set MS.
So then I went to a new neurologist here in Texas, of course, and she ordered me new MRIs and and nerve shock and vision test. The brain mass has not grown, and I passed all my tests. My blood test came back with high ace levels, whatever that is, and my neuro said to see a rheumatoid doctor.
He then told me that I might have sarcoidosis and to come back in a year to test my "ace levels" again which I did, and a year later what do you know - he then said I was fine. That was about 3 years ago.
Now I'm just tired, have the same stuff but now I just want peace... I spend my days in the restroom and I'm constantly in some sort of pain and I'm just sooo depressed and tired from all this.
What should I do? Should I try and get some kind of test with my spine? I've also recently fallen into stage 2 hypertension, but it fluctuates from there to normal wherever it wants. I don't know if that has any connection.
I just want ease from my bladder, prostate, stomach, and pain. I just want to either be treated or have some sort of medication. I'm beginning to lose hope. Please pray for me...