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UPDATE - Angela's PML Struggle
Just wanted to let you all know about one of our members, Angela. Some of you may know her as a friend already and also know of her struggle over the past year. First a little background for those of you who don't know her very well.
Angela is the one behind the Flowers4MS Foundation (will open in a new window). If you don't know what that is, click the link to find out. She wanted to do something to help raise awareness and funds for the cure of multiple sclerosis.
She is known on YouTube as angelausa, where she shares her experiences with MS. About 2 years ago, she began taking the treatment Tysabri at the urging of her doctors. She shared her progress with the treatments on videos which you can still find on YouTube. After 22 treatments with Tysabri, she developed one of the worst side-effects of taking this medicine - PML - a brain infection.
This infection almost took her life life last year. She fought and won her struggle with PML. Although she won the fight, she still has an uphill struggle to regain her strength and cognitive functions among other things. She spends most of her days resting and can no longer write the long letters to her many, many friends like she used to.
She believes that she will eventually get back some of her abilities as she is working hard on this everyday. Not overdoing it, but as much as she is able. She is not there yet, but she can get there. This is why you may not have received a letter from her in a long while. She still thinks about everyone and wants you all to know that she misses you and still cares about each of you just as much as she always has.
If you wish to leave a comment for her, you can do it here on our site after her interview (you can read her interview by clicking the link below), or if you know her on YouTube. She may not be able to comment back, but she does read and appreciate your kind words. Keep her in your thoughts and when she is able, she will be back to share her story and how she fought her way back after a scary experience with Tysabri.
Drop her a line if you can to let her know that you wish her well,
Thanks for listening,
PS: Here is her latest video talking about her experience.
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Cir & Akrista
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