by Ronda Roaderick
Hi, my name is Ronda.
I developed Optic Neuritis in may 2011. I was admitted to the hospital and had so many tests. I had MRI of brain & then one of spinal cord b/c the 1st MRI showed a lesion on my brain. The 2nd MRI showed another lesion on my spinal cord.
I do have balance, coordination, & brain fog at times and also "word finding" issues. I was diagnosed with Fibromyalgia about 10 yrs ago. (I think now that it was NOT Fibro).
I am a 49 yr. old female. Two yrs. ago I could tolerate 6-8 hours working in the yard in the summer. I no longer tolerate even an hour.
My Neuro seems to be so hesitant to give me a solid diagnosis. I feel that I've had episodes for yrs. I've even gotten to where it hurts so bad to stand or walk. My feet sometimes feel as someone has put a heating pad on my feet - (mostly evening & night). I have very extreme fatigue.
They tried Nuvigil and it had no effect. My EEG showed slowing bi-temporal lobe. I know that the MS treatments are very serious meds with very serious risks. Could it be that my neuro is afraid to tell me yes or no on the MS diagnosis?
PLZ give me your input. I have dizziness a good bit. I've already fallen since out of hospital. I thought I had slipped in something. (I was barefoot in my kitchen). When I looked to see what I slipped in, there was nothing there.
It has been 3 months since Optic Neuritis started and I still do not have sight back. IV steroids would speed recovery, but they will not do that because I do not have a solid diagnosis of MS.
Oh, I did have spinal tap and it came back good. I feel in my gut that this is MS. I know how my body has felt in the past. I have become so fatigued that daily activities are difficult. Especially since my Optic Neuritis, but I been feeling more fatigue in the past 2 yrs.
I am now on Lamicital XR, I guess b/c of the EEG result.
PLZ, I need your input.