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by Sandy Stolaronek
...Slowly, Steadily, Worsening :-(
I was DX'd in Oct. 2010 and since then, I have experienced slowly worsening of my symptoms. I have tremor, spasticity, ataxia, fatigue and weak legs. My right side is perpetually heavy and numb feeling or like there is a decrease in sensation.
I am not on any DMD's anymore because they will not stop the damage going on since I am progressive. I plan to live my best life everyday despite my illness and try and have the best quality of life I can. I try and enjoy the smaller things in life that bring me joy, especially my kids and pets.
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Cir & Akrista
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