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Father and Son with MS

by I.
(UK)

I'm 43 and have primary progressive multiple sclerosis. I was diagnosed about 4 years ago. 2 years before me being diagnosed, my son, who at the time was 15 was diagnosed with (PPMS). We are both in wheelchairs.

I am sick and tired of all the negativity about finding a cure for (MS). Drug companies, no way do they want a cure for (MS). Most neuro doctors don't want to find a cure because they will be out of work. The FDA doesn't want a cure for (MS) because of back handers from drug companies. And then you've got research centres they just want to keep in work.

I phoned one here in England JK Rowling MS Centre in Scotland and asked them if they will have any trials for (PPMS) and was told no, sorry you and your son are to gone. Not in those words but
That's what they meant.

I also went to a London hospital about 2years ago for the drug (GILEANYA) but was told sorry not for you your to far gone even though it may make a 20 or 30% difference to me. Basically everyone with multiple sclerosis are on their own not just me thinks this but everyone I speak to with (MS) say the same.

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May 21, 2013
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starstarstarstar 		Re: Father and Son with PPMS
by: Anonymous

Hello, I just read your update and wanted to respond to you. I do not have MS, but my dear son-in-law was diagnosed July, 2011. He has RRMS right now. At first, I read and read and read about everything MS. I got so excited when I read about the latest "cure" with CCSVI.

My excitement soon turned to disappointment when I read that this particular treatment wasn't really helpful. I do understand why you feel that the "Big MS Money Machine" isn't devoted to finding a cure. I do, however, continue to hope and pray for a miracle.

Please don't give up! We never know.... a cure could be just around the corner. I will continue to pray for my son-in-law and all the others who have been diagnosed with Multiple Sclerosis.

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