MS with Type 1 Diabetes?

& How Do I Ask My Doctor?


I was diagnosed with Type 1 Juvenile Onset Diabetes when I was 11 years old. Around the age of 22 I started developing symptoms of fatigue, vertigo, falling (a lot), extreme vision changes(blurry, floaters, bright flashes, brighter colors in left eye, and sensitivity to lights), muscle spasms, twitches and jerks. (I'd throw my pencil across a room), short term memory loss, numbness.

Oh and let me not forget the EXTREME pain. I am 36 now and been complaining to my doctors since 22...over 10 years now. Not a single one of them has ever even mentioned MS to me even though I seem to have all of the symptoms with an exception to the tremors.

I have been progressively getting worse over the years, even having to start using the scooters at the store just to run in for milk. One of my old doctors threw a fibromyalgia label on me and now everything revolves around that... I don't have the symptoms of it.

How do I ask my doctor to look into MS, without offending him? Plus, can a person with diabetes have MS too?



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Feb 09, 2012
MS and Diabetes
by: Akrista

Hi Toni,

Seems as though you have many of the symptoms, people with MS complain about - vision problems, vertigo, balance problems (and falling), to name a few. The reason your doctor probably gave you a diagnosis of fibromyalgia is because a few of the symptoms overlap - including extreme pain.

Are any of your doctors neurologists? If not, you should try to get a referral to one. If you do have a neurologist, maybe you should try to get a second opinion for your fibro diagnosis. How to ask your doctor for one?

The only way I know to do is to just ask. Explain to him/her that you don't feel comfortable with the present diagnosis and would either like another doctor to check, or a referral to a neurologist.

You are the one that is sick. You are in pain. You have lived with this for years. You would at least like to have a thorough neurological exam to rule out the possibility of MS. Don't be afraid to speak up for yourself and if you feel uncomfortable, have someone else do it.

Another option would be to email your concerns to the doctor if they have this system in place. We've used this on several occasions and it works very well. Many times you can explain yourself better in writing. And if you have problems typing, dictate your email to someone and have them type it down for you.

If they don't have an email system in place, try writing a letter.

The other part of your question, can MSers have diabetes? It has been my experience that people with MS can have more than one medical problem or condition at the same time. So the answer to that question is yes. I've even heard of MSers who had fibromyalgia.

Hopefully you will be able to find a doctor who will listen to your concerns and you will find out if you have MS once and for all. If you have any other questions, please don't hesitate to ask.

Take care,

Akrista

Mar 21, 2012
MS and Diabetes
by: Anonymous

I have MS and Diabetes(type 1) so yes it is possible. It is hard to find others with both but from my research it is possible. Type 1 diabetes since I was 9 years old MS since age of 33 I am now 37.

Apr 28, 2012
MS and Type 1
by: winning lotto

Felt like I just won the lotto not only type 1 but throw some MS at me too! I just want to know how many others have both? I'd like to talk to someone in the same boat as myself.

Jun 10, 2012
MS and Type 1 diabetes
by: Karleen

Yes, you can have both. I have had type 1 for 27 years (developed it at age 18). I was diagnosed with MS 6 months ago, but had symptoms for years. I was seeing my endocrinologist and I kept telling him for about 3 years that I had balance issues.

He told be to close my eyes for a second and then open them... Then he would say, "You have better balance than I do." After 4 years of this I demanded to get a referral to a neurologist.

I went to the neurolgist and he said it sounds like MS and had me do an MRI. Yup...I have it. So don't let a doctor intimidate you. I think back when I started to have symptoms that I could have started on a drug sooner and slowed my progression.





Aug 03, 2012
have you had an MRI and/or lumbar puncture?
by: Robin

Hi Toni,

I was diagnosed with an MRI, but my Lumbar Puncture, (I've had 3 lumbar punctures and numerous MRI's.) You need to change doctors. I went to 3 neurologists and found a great one. I know they say FIBROMYALGIA. But that was just a cop out.

You need to go to a neurologist and tell him all the problems you've been having. If need be you need to make your insurance approve for you to go to the neurologist. You need to tell them that you might have MS - your doctor won't send you.

You are entitled to get another opinion and when you make it (your appointment), you write down all your symptoms and explain how you feel to your new doctor. Keep asking for a doctor that will understand you and help you.

God bless you in your search.

Robin

Oct 08, 2012
ms & type 1 diabetes
by: Anonymous

Hi, I live in the UK, I'm 29 and I have diabetes of 22 years, MS of 4, coealiacs disease of 1 year and an ongoing heart problem. It's very very hard to find people with type 1 diabetes & ms, let alone anything else! From research I've done type 1 and ms is more common than anybody thought and there's a link between the two, hope this has been of help.

Feb 04, 2013
MS and diabetes (type 1)
by: Brett

I have had diabetes (type 1) since I was 6 and MS since 29. I am now 31. Have thyroid disease also (Hashimotos) but that goes along with everything. If you have any questions feel free to contact me. Email is Rosenblatt.brett@gmail.com

Feb 05, 2013
Wow
by: Anonymous

I can't believe after all my searching there are so many here! lol I live in the UK and have had type 1 for 23yrs, MS for 5, coeliacs for 2 yrs and a heart problem. Every year there seems to be something new. They think I have osteoporosis now, so the answer to your question is yes. Once you have 1 autoimmune disease you are more at risk for others. It's called M.A.S multiple autoimmune syndrome. Don't give up trying to get the right diagnosis. It took me 7 yrs and all that was needed was an MRI.

Mar 13, 2013
i have both
by: Anonymous

I have type 1 diabetes since the age of one. And when I was 18 I found out I got MS with a very severe attack. Now I am only 22. I don't know anyone with both diabetes and MS.

Mar 22, 2013
Type I diabetic and ms
by: Wife

I am married to a wonderful man. He is 47 and has been type one diabetic since six. In 2005 he had a stroke we thought. Then last year went to neurologist because thought maybe he had another stroke. Come to find out he had MS and has probably had it since his 20s.

All his signs are in the brain. Oh, he also has early signs of Alzheimer's - ugh! His immune system is so low I dread him getting sick cause usually ends in a stay at hospital. He is the strongest man I know but am wondering if there's a support system for spouses also?

Prayers to all the strong ones out there just trying to survive. He's 47, retired cause just couldn't remember basic duties at work. Anyway, anyone that can relate or share information please contact me at Tammylv1970@gmail.com

Mar 22, 2013
Support for spouses
by: Anonymous

Hi, just read your comment about spouses and support, if you get in touch with your local National Multiple Sclerosis Society they will point you in the right direction for support, hope this helps.

Mar 31, 2013
What treatment to go for?
by: Ruth

Hi, I have had type I diabetes for 19 years and newly diagnosed with MS in Dec 2012. I have a 15 month old daughter and I am currently trying to decide which treatment to go onto for my MS but it's really difficult to decide!

Are there any other diabetic people out there who are on treatment for MS and if so what are you on and how are you finding it with your diabetes? Any help gratefully received :).

Mar 31, 2013
Diabetes, ms & other autoimmune d's
by: Anonymous

Every treatment is trial and error but my advice is not to listen to anybody else. MS is very individual to each person diagnosed ie... you won't find anyone with every symptom the same as you and having other autoimmune diseases make that even more so.

Know your illness's and when something isn't right for you, you'll know :-) I have diabetes, MS and other autoimmune diseases. It's taken me years & years to realize I need to do this and the damage I've done through not knowing what is right for me is silly. Treatments are not for everyone and be careful not to be a guinea pig.

Jul 26, 2014
Yes, me too.
by: Moopy

I didn't read all the other comments, but at the moment I just got diagnosed with MS. Type 1 diabetic since 9, at age 32 got headaches (one that won't disappear). It came with double vision. Was told I was too young for things. Started with Cat-scan, no stroke there, but suggestion of MRI.

MRI and there were lots of lesions. A week after the MRI, I had a spell where I felt like I was on a boat, and refused to leave the bed for a day. Went to the doctor, he said maybe, but again systems are of a bad diabetic. MRI to back, and there were lesions there too. This week they gave up and said MS. Though, still in denial. I was on a non-steriod steriod, and avoided caffeine for the whole week to avoid highs.

Jul 26, 2014
Dr referral
by: Anonymous

Yes, a person with diabetes can have MS. I have found in my research that those with diabetes usually end up having other autoimmune issues also. I would ask for a referral to a neurologist. I would referred to a orthopedic doctor, ent befits sent to a neurologist. One has to be a self advocate regarding health problems as doctors do not know and understand everything.

Jul 27, 2014
My comment 05 feb 2013
by: Jodie

I just wanted to let you all know I created a Facebook page years ago its called Multiple sclerosis&diabetes. Not a lot of people use it anymore, but I would love to see it used how I intended it to be..., for advice, help, and developments in research for different auto-immune diseases. I hope this helps everyone 😊

Aug 14, 2014
sounded farmiliar
by: Anonymous

After reading this comment I had to say something. I was also diagnosed with type 1 Diabetes when I was 11. I turned 36 in June, and I have pretty much been diagnosed with MS in the last month due to a seizure I had on July 5th.

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