I have always been the glue that holds my family together. There is no room to be weak or feel sorry for myself because if I fall apart so will everyone else.
That being said I resent this disease! I have always done the right thing and have struggled to get to where I am. This "thing" hit right as my daughter turned 18 and I FINALLY graduated with my Bachelors degree (I went to school and worked full time for 10 years to accomplish this).
My husband and I should be enjoying this time, not worrying that I will have a bad night because of the medication or that I cannot drive because of spasms. My mom should not have to drive me to work!
I know life is not fair but this SUCKS!
Thank you for this chance, I could never say any of this out loud.
NOTE TO POSTER
(I removed your name as this is a place to post anonymously. Only your first initial is added. I wasn't sure if you knew that your name would show up. If you don't mind having your first name on the post, just make a comment to this submission and I will add it back.
Otherwise, thank you for having the courage to post how you feel.
Also, to all future visitors, just add your initial or leave "anonymous" in the name field.)