MS is...

by Amanda
(Wentzville, MO, USA)

MS is... "remembering to not take the small things for granted like feeling the wind blow your hair, the grass between your toes, watching the sun rise and set, and the miracle that today... today you can get out of bed by yourself."



I wanted to submit my "MS is...", I try to focus on the good things, and the good days... trust me we all know when we're having a bad day but even though, as I write to you I have double vision / vertigo / loss of balance / nausea / and fatigue and am on steroids... I have to be grateful for what I CAN do! :)

I've been diagnosed since June 2005. Started on Rebif and in the process of switching to Tysabri.

This is the first time I visited your website... Saving to my favorites!

Amanda



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Great Project!

by Marie Cooper
(New Jersey)


I can only imagine the work that goes into a site with so much information on it! Thank you for the effort you both extend in education and support.

I will add a link to you on my blog, MS Renegade. I have a list of MS related blogs there. It is amazing to see the diversity of people and perspectives, all part of the MS community and supporting each other.

Best wishes,
Marie

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Great Positive Site

by J.

It is good to see that you both are providing positive information regarding MS. Out of your adversity you are giving of yourselves. I pray that God will continue to bless you both.


Reply:
Thank you for your comments, J! MS can be such a negative force in peoples lives. We like being able to bring something positive, whether it's information to calm your fears or support to know that someone knows what you're going through.

Hopefully multiple sclerosis will soon be a thing of the past and we'll be out of business.

Thanks again,

Cir and Akrista

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LOVE THIS SITE BUT!!!!!!!!!!!!

Hi, Joann Highfield from Canada.

Love this site Akrista, but was wondering if you could put games on it. I like being here but have to leave to play them.


REPLY:

Hi Joann,

That's funny, lol, but yes, I will see what I can come up with. That would be fun to have a game section or page for everyone. Is that what we've been missing all this time? Must be the missing piece of the puzzle here, lol!



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LOOVE THIS SITE

I just stumbled upon this site and wanted to say Thank You. It's very comforting knowing there are others out in the world dealing with this same issue. I love the sense of humor on this site and information. Keep up the Wonderful Site. I have become a daily visitor.

Tootles,
Carol B.

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Love All The Useful Information!

by Cyndi
(Michigan)

Hi, My name is Cyndi and I live in a small western Michigan town, where everyone knows everyone and not too many secrets are kept! But I have been keeping one for a while now. I have MS!

I was diagnosed just recently after some 15 years of being labeled as Lupus and Rhuematoid Arthritis and Fibromyalgia! Whew, that's a mouthful. Something always seemed more off though to me and I would experience the normal (weird) symptoms that the doctors couldn't explain.

I just thought I was a clutzy person! I would fall from time to time and have dizzy spells that made my legs feel like sacks of potatoes were hanging from them! Not a pleasant feeling. I also suffered from the occasional Optic Neuritis, which really could drive me crazy, considering I am all about technology and can't survive without my computer and phone and T.V.

I just wanted to let you know how much your site has inspired me to be able to start to open up to others about my MS. Your stories and information has helped me tremendously to come to terms with my disease and learn to manage my symptoms with more ease.

So, I just wanted to say Thank You. I will share this site with anyone who asks me about my condition and would like to learn more about it as well. It's been a real blessing.



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TOB !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

FOR THE FIRST TIME I SPENT THIS EVENING LOOKING THROUGH EVERY THING ON THIS SITE. IT IS A GREAT SITE, I LOVE IT. EVEN ADDED A FEW THINGS TO IT. DON'T WORRY TOB, I WILL BE BACK. LOVE YOU BOTH AND HOW IS THAT GRAND-DAUGHTER DOING?
JOANN

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What a wonderful way to inspire!

by Angela
(Connecticut)

Dear Cir and Akrista,

I would like to let you know how much I enjoyed looking through your site and seeing how many ways you are inspiring others!

I love your creativity, your sense of humor, your way of seeing things in a different light and I love the whole website because it informs people, it allows them to feel less alone and it shows them how people can live a full life while dealing and living with MS!

Thanks for everything you are doing!

Take care,

Angela

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